737 sign the Rick Hansen appeal

YOU have made our appeal campaign to the Rick Hansen Foundation the best ever.

Rick Hansen has been sent the questions that you signed your name to and now we will await an answer.

1. How much are you planning to spend in the next five years to find a cure for chronic spinal cord injury?
2. Which research projects (basic and clinical research) will be funded by Rick Hansen organizations to get people with chronic sci out of wheelchairs?
3. What is the Rick Hansen Foundation/Rick Hansen Institute's ability/willingness to fund promising science to cure chronic spinal cord injury both domestically and internationally?


Of course we all know that we've asked, but a press release has also been issued to the Canadian media and all of the main presenters at the Interdependence Conference have also been notified that we are waiting for answers.


I would love them to come back with a large list of all the things that they have done and are planning to do to cure chronic spinal cord injury. The only thing I would say then is thanks and "Why didn't you tell us when we first asked?"


In the meantime, you can also help spread the word by twittering our press release, putting it out on facebook, and even sending it to people that YOU know in the media or think would be interested.  You can find the press release at http://bit.ly/RHFPR. 


Thanks.

CURE for the Osaka Strut. So sign it!

No one knows that I can really strut!

When we win cure, I promise that I'll take you on a tour of Osaka doing the Osaka STRUT!

What you got to do to win a front row seat to the Osaka STRUT is to SIGN!

ONE MORE DAY to sign for CURE for our appeal to:

Rick Hansen to stand on CURE's side. www.bit.ly/RickHansen

To the California Assembly to fund the Roman Reed cure paralysis act. http://www.stemcellsandatombombs.blogspot.jp/2012/04/hit-send-button-below-to-help-cure-for.html

Don't forget the Osaka STRUT!

Four more days to sign the Rick Hansen appeal

Thanks to all the great work you all have done, almost 700 people world wide have added their names to our appeal to Rick Hansen. As the leader of one of the biggest organizations dealing with spinal cord injury in the world, we all want to know his plans to CURE chronic spinal cord injury.


Just getting 700 people to add their names to something like this is a victory in itself, but we don't want to stop here. If you have a few seconds, I'd like to give you three options to spread the word further. On Wednesday, Japan time, which is Tuesday for most of you, I will wrap this up and send it to Mr. Hansen and to the Canadian press.


Let's keep up the good work and see how many more we can get in the last three days.


Email is the best way to get your message across to your friends.
Launch your email and copy and past this short message.


I know you're busy and so am I so I just want to write a really short message. Paralyzed people and their supporters throughout the world have some very important questions to ask about a cure for chronic spinal cord injury. In one minute you'll be able to read the information and add your name at www.bit.ly/RickHansen. I already have and I hope you do, too. www.bit.ly/RickHansen.

launch www.twitter.com 

Another great way for you to get your message across is on Twitter. Many people value this as a reliable place to get news and your followers would love to get your news about signing our appeal.
Just click the icon to launch twitter and copy and paste this short message.


700 have added their name to Rick Hansen to stand up for a cure for chronic spinal cord injuries. Add your name. http://www.bit.ly/RickHansen

launch www.facebook.com

Finally, everybody's favourite, FaceBook. Go to your status update and urge all of your friends to add their names to our appeal. Click the icon to launch FaceBook and copy and paste this message to your status updates.


Almost 700 paralyzed folks and their supporters have signed our appeal to Rick Hansen to stand firmly behind a cure for chronic spinal cord injury. How about you. www.bit.ly/RickHansen

Appeal to Rick Hansen - 5 days left - please sign

The Rick Hansen Foundation (RHF) and Rick Hansen Institute (RHI) is one of the largest and well financed organizationdealing with spinal cord injury (SCI) in the WHOLE WORLD.

but…

There is a concern in the paralysis community about the RHF and RHI’s spending on a cure for paralysis.

In 2011 these concerns led to over 300emails being sent to RHF’s CEO, Mr. Art Reitmayer, asking for clarification.

SO WE ASKED A VERY SIMPLE QUESTION,

“Please outline your spending on translational research for central nervous system regeneration, i.e., a cure for spinal cord injury.”

We were shocked to find the answer void of any content. He answered,

“81% of funds raised by RHF have been directed towards the search for a cure for SCI and quality of life initiatives.”

You can imagine the red flags that were raised by an answer like this.

So this time we want to forget about the past and ask Rick directly about RHF/I’s plans to get people out of wheelchairs and walking and we want an announcement made at the May Interdependence 2012 conference in Vancouver.

Help Rick strengthen CURE’s side by adding your name, along with over 600 people worldwide, to the following questions.

********************************************* 

To: Mr. Rick Hansen

Re: Getting us up and walking

We want to be with you in your fight to cure paralysis so naturally we want to know if you’re really with us.

Please answer the following clearly in writing and publicly at the Interdependence 2012 conference.

A.    How much are you planning to spend in the next 5 years to find a cure for chronic SCI?

B.    Which research projects (basic and clinical research) will be funded by Rick Hansen organizations to get people with chronic SCI out of wheelchairs?

C.    What is RHF/I’s ability and/or willingness to fund promising science to cure chronic spinal cord injury both domestically and internationally.

************************************************ 

This campaign has now ended. Thank you for your support.

The May Day spirit to cure paralysis

Add your name to our appeal

I know many of you in the paralysis world don't think about May Day like I do. In fact, some of you probably think that mixing May Day and cure is not such a good idea.

But from where I sit, I don't see a really big difference.

May Day was started by those who refused to accept the status quo. Just like us in the cure movement who don't buy into the position that we'll never walk again.

May Day is about people working together to improve their lot in life. How different is this from all our campaigns? We know that one voice will not get us out of our chairs. We believe in many voices singing in unison.

May Day is international. And on the left you can see all the people from different countries who have supported our campaign to the Rick Hansen Foundation and to the California State Assembly.

So now I leave you with the words of Frederick Douglass who was born a slave, escaped to freedom, and campaigned again slavery his whole life.

The next time someone tells you that sitting and waiting for a cure for paralysis is the answer, and that we should not raise our voice too loudly or boldly, please tell them what Frederick Douglass said.

"If there is no struggle, there is no progress. Those who profess to favor freedom, and yet depreciate agitation, are men who want crops without plowing up the ground. They want rain without thunder and lightning. They want the ocean without the awful roar of its many waters. This struggle may be a moral one; or it may be a physical one; or it may be both moral and physical; but it must be a struggle." 


So please remember to add your name to our campaigns!

Click to Cure - Roman Reed Cure Paralysis act

Hit the send button below to help a cure for paralysis.

In March I told you about the Roman Reed Cure Paralysis act in California. This truly extraordinary act to fund cure research had lost it's funding and California cure activits were leading a campaign to resurrect the money. 

A very simple idea to add one dollar to moving violating traffic offences is being proposed.


You can find out even more about this amazing act by clicking here.

We needed your support to get this truly neccessary act to get the through the public safety committee. You responded wonderfully by sending 230 emails in a few days and it passed the committee.

Now it's at the appropriations committee and if it fails, the green light to add the one dollar will fail. We need cure laws with money, not flowery words.

I urge you to send an email to Assembleymember and Appropriations Committee Chair Mr. Felipe Fuentes and ask him to vote YES.

We only have a few more days on this one so I want you to act immediately.


This campaign has now ended. Thanks to everyone for signing.

Another reason for adding your name to our Declaration of INterDEPENDENCE

We're still adding names to our appeal to Rick Hansen and his foundation for a cure for chronic spinal cord injury, and we want you to add your name, too.


You can sign and never leave this page, just by looking at the end of this post.

Today, we have Barb from Canada who tells us why she signed and wants you to sign. It's not too late for you to listen to Barb and sign the appeal at www.bit.ly/RickHansen or at the bottom of this page.

So what does Barb say?

"As a C-1 vent-dependent quad, slogans about independence or wheelchair sports do not offer me much consolation, while a "research" budget almost void of actual cure efforts offers me no hope whatsoever. Where is the urgency? Where is the prioritization of clinical trials that will repair spinal cord injury rather than perpetuate it as a cottage industry? Anyone in my situation would be very foolish to question the value of sci quality of life and care research, but there must be a greater balance in resource allocation. The Rick Hansen Institute cannot claim to be a world-leading cure institute when it devotes so little of its considerable funding and support to the only type of research that will make "a world without paralysis after spinal cord injury" a reality rather than an empty catch-phrase. Please sign this petition if you agree."

This campaign has now ended. thank you for your support.